Wiggy Wednesday Supports XIA-GIBBS Syndrome this September
Posted on September 13 2021
Wiggy Wednesday raises money for cancer charities in Ireland 10 months of the year and the other 2 months we raise much needed funds for guest charities. September 2021 is a guest month and we will be raising money for the XIA-GIBBS SYNDROME.
What is XIA-GIBBS SYNDROME?
Xia-Gibbs Syndrome (‘XGS’) is a very rare, newly-discovered genetic syndrome in which the AHDC1 gene is mutated or missing. While only a small number of people have been diagnosed with XGS so far, it is likely there are thousands affected worldwide. XGS is a neurodevelopmental disorder, which means it affects the way the brain and nervous system function and the way the individual develops. Find Out More
September 12th to 19th is XIA-GIBBS SYNDROME Awareness Week.
Instead of Wiggy Wednesday where we put funny wigs on to raise money we will be putting our bright t-shirts/jumpers on this Friday 17th September.
You can get involved by donating HERE